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What It’s Like to Live with a Disability
As a polio survivor since I was an infant, living with a disability has been my “normal.” But, like most polio survivors, I just gritted through the limitations and inconveniences, trying to keep up with everyone else. I’ve been thankful for the opportunities to speak to children about what it’s like to live with first a limp, and now the need for a scooter to get around, as several months ago I stopped being able to walk. My favorite thing to tell them is, “I am not my polio leg. I am me. You connect with me by looking in my eyes. When you see someone in a wheelchair, please…
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The Stink of Self-Pity
When I got polio as an infant in 1953, just before the vaccine was developed, my parents were instructed by the doctors and the therapists that the very worst thing that could happen was for me to wallow in self-pity, and to never let me go there. Maybe they all thought that if no one ever talked about the huge assault of this life-changing trauma, it would never occur to me to think about it, and so I’d never end up in the Self-Pity Mudpuddle. So what was modeled to me, and which I dutifully followed, was a constant response of denial. So I grew up wondering, but never able…
